Fewer than 2000 cases of ROS1+ cancer are diagnosed in the USA each year, and the numbers are similarly low world wide. Most physicians will never meet a patient who has it, and few clinics see enough patients to generate useful research and clinical care data. But it is research that saves lives.
The ROS1ders believe collecting diagnosis, treatment, outcome and patient experience information from an international group of patients over time is our best option for identifying optimal care.
Corinne, a ROS1der, shares why research is important to her.
Please help us to improve outcomes for all ROS1+ cancers by donating to the ROS1ders Global Initiative.